Philanthropy

Still Have Questions About Impact Investing?

Posted on by Case Foundation

We’ve got Answers. Here’s a recap from the recent webinar: Everything you need to know about impact investing (in 1 Hr!). For those of you who missed it you can WATCH the webinar, which featured our own Jean Case and Kate Ahern of the Case Foundation; Melanie Audette of Mission Investors Exchange; Dan Brillman of Unite Us; and Stacy Donohue of Omidiyar Network.

Jean Case, CEO of the Case Foundation opened the discussion with a description of why impact investing and social enterprise are opening the door to important new opportunities for philanthropists to experiment and start making real impact. She shared pivotal trends and exciting recent developments in the field, like Happy Family’s big success for investors, which earned up to 30 times their return when Danone purchased the company. Finally, she provided insights into how foundation leadership can start to move from idea to action on impact investing.

Next, Kate Ahern, VP of Social Innovation at the Foundation gave an overview of the ins and outs of impact investing. She explained the range of options available for investors looking to bring their social goals to their financial strategy and vice versa. She also identified some of the unique opportunities for organizations like foundations to engage in the field, for example through Social Impact Bonds and backing supportive policies.

Stacy Donahue, Investment Partner at Omidyar Network and Dan Brillman, Founder and CEO of Unite US shared the perspectives of a social investor and a social entrepreneur. Omidyar Network has, through its LLC, provided Unite US with a Series A equity investment. Together they provided a rare look into the practical interactions between a company and its philanthropic, for-profit investor. Both Donahue and Brillman shared great insights into the values of reaching beyond your bubble for highly impactful collaborations.

At the Case Foundation we believe in the power of philanthropy, nonprofits and government to drive social change, that’s why we’re so excited about the growing momentum in impact investing. Over the course of the last two years we have witnessed a number of game changing moments, which we featured in our recent blog post, A Hot Summer for Impact Investing. From Goldman Sachs Asset Management’s recent acquisition of Imprint Capital, to impact investing champions like Darren Walker and the Ford Foundation taking leadership of the U.S. National Advisory Board on Impact Investing—each of these efforts have been rooted in building a strong ecosystem for the sector.

As part of this commitment to the ecosystem, we have spent countless hours educating and activating greater numbers of impact investors and educating others on this powerful tool for social change. Last year we released A Short Guide to Impact Investing, a quick and easy to read resource for anyone interested in impact investing. This year we’ve embarked on a number of educational events—from our journalists training hosted in conjunction with the ImpactHub and Arabella Advisors, to our webinar, this week, in partnership with Council on Foundations and Mission Investors Exchange.

We hope you will continue the conversation with us as we continue to explore more opportunities to drive social change through social entrepreneurship and impact investing—join us on Twitter using #ImpInv.

Be Fearless Spotlight: Open Road Alliance

Posted on by Case Foundation

This Spotlight is authored by guest writer Caitlin Kelly as part of a special blog series by the Case Foundation featuring Be Fearless stories from the field. Follow along with us as we meet people and learn about organizations that are taking risks, being bold and failing forward in their efforts to create transformative change in the social sector.

It can happen to the longest established, best-funded and most carefully-run organizations—a sudden disaster that throws off months or years of planning, disrupting its ability to continue important projects. It might be an essential piece of equipment, a truck or generator, that breaks down and can’t be replaced using restricted funds. It might be a natural disaster that disrupts operations, with no contingency capital to address it.

Whatever the catastrophe, Open Road Alliance (ORA) stands ready to help, able to offer grants of up to $100,000—with decisions made within two to six weeks of applying. Their average grant is $76,000 and, since 2012, it has awarded $3.5 million to groups including the Global Press Institute and the Grameen Foundation.

“Those ‘Oh my God’ moments are where our funding is focused,” says Executive Director Maya Winkelstein.

The typical funding model “is not working on a micro or macro level,” she adds. “On a micro level, it traditionally takes six to nine to 12 months for a grant application to be approved and to access the capital. It’s so restricted and there’s no mechanism to address problems, so [when problems arise] that initial investment and all the work is lost. So, we provide that money. We’ll be fast and flexible and we’ll solve the problem.”

On a macro level, the inherent power imbalance between funders and applicants perpetuates a culture of obfuscation, she adds. “There’s a lack of transparency and honesty thanks to the very real fear NGO’s have” to be truthful about troubles they may face and need funds to solve.

Some ORA grants are also recoverable funds, offered at varying interest rates, essentially a bridge loan to pull a group through crisis—knowing that committed income from their funders will eventually arrive. That program began in 2014, scaling up in 2015, a response, says Winkelstein, “to what NGO’s told us they needed. We found that when organizations encounter these unexpected obstacles and need money the problem isn’t access to capital, but access to capital right now.” ORA offers these loans in three situations: when the obstacle is cash flow, when capital is needed for unexpected growth and when raising the needed funds would simply take too long.

Recoverable grants allow Winkelstein—and ORA’s founder, philanthropist Laurie Michaels, whose personal income funds their projects—to take much greater risks than other groups. “The opportunity cost is much lower,” explains Winkelstein. When a traditionally funded project fails or stalls, “you’ve basically lost a bet and that makes people risk-averse. We’re betting on impact, not financial return, because we use the same re-paid funds to make multiple bets over and over. It allows us to take more risks.”

But, like every funder, ORA insists on regular reporting. “When we accept an applicant, it has specific measurables for the short term and we talk to them four times a year, plus a full report at year’s end,” says Michaels. “We make as much effort to judge our [own] effort as anything else.”

Their decisions—made quickly, with applications accepted on a rolling basis—are sometimes a “no-brainer” and sometimes, Michaels admits, “we’re teetering on the edge of ‘Is this risk unacceptable?’ We don’t expect every project to be perfect.”

Michaels urges other foundations, and grant applicants, to be far more open and honest about their projects’ potential difficulties. “One of our goals is to have a discussion of risk, and planning for risk as a normal part of any grant application. At the moment, there’s no place to openly address what could go wrong. Not vaguely, but matter-of-factly so I know what they’re up for. What’s your Plan B? Plan C?”

The two—who work from offices in D.C. and Aspen, and without a board of directors—researched their unusual model for a year before starting the organization, consulting other non-profits and philanthropists to determine who they would fund, and under what circumstances. “One of the critical criteria is that the problem be unexpected. Could it have been anticipated? Some of our applicants’ stories are heart-wrenching, but they won’t get funded,” says Winkelstein.

“The unexpected is not a sign of incompetence, but a sign of the world.” After all, she adds, “the private sector calls it a pivot.”

“We believe that philanthropy is going through a fundamental shift, from a charity model to an investment model,” says Winkelstein. “It’s changing from donors’ desires and intentions to seeing this work as an investment, doing good to actually achieve results. That’s where the trends are and the more sophisticated funders are going. They use metrics and look at ROI, an attitude that didn’t exist 20 years ago.”

In their autonomy, sense of urgency and willingness to ask tough, perhaps uncomfortable questions, Michaels and Winkelstein know they’re often working outside typical philanthropic norms. But for ORA, urgency is standard operating procedure.

 

Feeling inspired? If you’re ready to begin your own Be Fearless journey start by downloading our free Be Fearless Action Guide and Case Studies.

Be Fearless Spotlight: Fail Forward

Posted on by Case Foundation

This Spotlight is authored by guest writer Caitlin Kelly as part of a special blog series by the Case Foundation featuring Be Fearless stories from the field. Follow along with us as we meet people and learn about organizations that are taking risks, being bold and failing forward in their efforts to create transformative change in the social sector. 

 

Can you make a living—and help others succeed—by failing? Ashley Good, founder of Toronto-based Fail Forward, likes to think so, though it took a lot of personal failure before she figured this out.

Good wasn’t always so easily categorized as a risk-taker. She got her start studying geophysics and environmental science at the University of British Columbia, after which she had the opportunity to work with the United Nations in Cairo—a sobering experience that taught her “how complex the problems are and how inadequate the solutions.” Later, Good worked as a consultant in the oil and gas industry, flying in and out of Fort McMurray, Alberta, and with Engineers without Borders Canada in Ghana. It was when she followed a sweetheart to Ghana that she first encountered risk head-on.

“I ended up heartbroken, unemployed, living in my parents’ basement in Toronto,” she recalls. “Everything I’d poured my heart and soul into hadn’t gone anywhere. I very much needed a way of dealing with failure.” Good was inspired to take on the leadership of writing a report to document the failures of Engineers without Borders Canada.

Her analysis garnered her a lot of attention. As she puts it, “Failure needed me, as well.” Speaking truth to power demanded a special sort of fearlessness, she says, and that report “played a provocateur role. It was taboo to discuss failure openly, especially to the international development sector and especially charities. It was a learning tool.”

Naiveté helped. “I don’t think I appreciated how dangerous it was when I walked into it,” she laughs. “The failure I was describing was not a question of the quality of effort being applied. The entire system is one of power and ego at its heart.” She admits her own role in this: “In Ghana, I saw a problem and wanted to contribute to a solution. I wanted to succeed!”

Today, as she helps others cope with and mitigate their own painful failures, “it actually starts with decoupling ego from activity. The higher up you get in the hierarchy there’s so much at stake, millions of dollars, all those people who believed in you, who believed that you had the answer…”

“My work asks people to talk about their failures which is painful,” she says. “You have to be true to how that feels for you. Failure looks very different depending how much power you have. Your role is key.” Failing is painful because “we tend to build our identities around certain labels: smart, hardworking, personable, successful, etc. Failure often puts those labels into question, so being fearless in the face of failure is difficult if we don’t have an understanding of what we can hold onto that goes deeper than those labels and allows us to remain a healthy, whole human being. We don’t talk about it enough. Our economic contribution is valued above our spiritual or wise selves.”

The fearless piece of Good’s work is often conceptual—breaking long-held and cherished notions of what works. “We have to stop talking about solutions! If the problem we’re trying to solve had a ‘solution’ it would have been done. Instead we often have no idea! We have some little sparks of ideas but we’ll go into these massive complex problems,” sometimes investing a decade of one’s life and work to solving them.

Key to success, says Good, is redefining what it means to fail. “The word failure is an interesting one,” she says. “I don’t think anyone can be truly fearless. At our best and most courageous, we feel our fear and do it anyway. I do love the spirit of fearlessness… Everything we do has elements of failure and success when we’re involved in something complex.”

Good began her work focusing on the non-profit sector, but, as she quickly learned, everyone fails and everyone needs help figuring out what went wrong. Today she works with foundations, grant-makers and governments. “I really moved up to that level quite quickly,” she says. “I started to see that failure wasn’t a non-profit problem, but was really a ‘how we communicate’ problem.”

Key to examining failure without the usual shame-and-blame requires a fresh point of view—using what Good calls blameless post-mortems. With calm, open-minded discussion, failure offers a useful learning tool.

Living with fearlessness is really what Good does, while performing the fundamental work of “transforming our relationship with failure so we can solve complex problems. That’s a pretty audacious goal! There’s always a tension between optimism and clarity of which path to take.”

 

Feeling inspired? If you’re ready to begin your own Be Fearless journey start by downloading our free Be Fearless Action Guide and Case Studies.

Questions about Impact Investing? Join our Webinar to get the Answers!

Posted on by Case Foundation

Chances are you’ve had a conversation, read an article or seen some news recently on impact investing and social enterprise. These hot topics are important subjects of conversation in the social sector—and issue areas you need to know about.

As the buzz grows more questions continue to surface what is impact investing really; how does it work; what are my options? And most importantly is it right for me and my organization?

On September 15th from 2:00 to 3:00 pm ET, the Case Foundation, in partnership with the Council on Foundations and Mission Investors Exchange, will host a webinar to cover everything you need to know about impact investing, in just one hour. Register today to reserve your spot.

During this free webinar, Jean Case, CEO of the Case Foundation will join Melanie Audette, Acting Managing Director at Mission Investors Exchange and other industry leading impact investors and civic-tech social entrepreneurs. Together, they will explain the full range of options available to empower foundations interested in deploying their philanthropic resources toward social good through impact investing.

Register today for free!

 In preparation for the webinar, download your free copy of A Short Guide to Impact Investing.

A Hot Summer for Impact Investing

Posted on by Case Foundation

The past few months have been full of news on the growing impact investing sector. Coming off of the announcements earlier this year—Bain Capital starting an impact fund under the leadership of Governor Deval Patrick, BlackRock starting an impact practice and Darren Walker and the Ford Foundation taking leadership of the U.S. National Advisory Board on Impact Investing—Jean Case recently described the increased buzz and activity as A New Inning for Impact Investing. She shares her insights on the growing movement that has until recently been in “spring training,” and an all-star line-up that is now taking shape.

We’ve summarized several key pieces of news from the past few months so you can read all about the latest updates. We look forward to seeing even more momentum this year!

 

Global Progress on Impact Investing

The Social Impact Investment Taskforce, established under the British presidency of the G8 in 2013, met in London in July to talk about progress achieved by member countries and to discuss what’s next for the group. Private and public sector representatives from G7 countries, the EU, Australia, Brazil, Israel, India, Mexico, Portugal, South Africa, China and others were present. Sir Ronald Cohen, Chair of the Taskforce, opened the Plenary Meeting by saying that “it’s impossible to stop an idea whose time has come,” and country report-outs on progress seemed to strongly support that statement. You can find presentations and reports from the Plenary Meeting on the Taskforce website.

New Report: Impact Investing Can Provide Market-Rate Returns

The Global Impact Investing Network (GIIN) and Cambridge Associates released results from a new study, the Impact Investing Benchmark. The report presents aggregate financial performance from 51 private equity and venture capital impact investment funds that have the intention to generate measurable social impact alongside a financial return. The report reveals that many of the early funds, established between 1998 and 2004, have achieved market rate or above market rate returns, demonstrating that impact investments don’t necessarily require financial sacrifice. GIIN and Cambridge Associates will provide quarterly updates on the benchmark.

Mixed Results for Social Impact Bonds

In an attempt to more effectively combat youth recidivism at the Rikers Island jail in New York, Goldman Sachs and Bloomberg Philanthropies launched the first Social Impact Bond (SIB) in the United States in 2012. The program provided cognitive behavioral therapy to youth at Rikers in an attempt to reduce their likelihood of returning to jail. Unfortunately, the new therapy didn’t work to reduce recidivism at Rikers, so the program has ended, and Goldman Sachs and Bloomberg Philanthropies have lost their $7.2 million investment.

Technically, the SIB worked: the program didn’t generate results, so taxpayers didn’t have to pay for it. Of course, we all hoped that the new intervention would have reduced recidivism. However, the pioneering model enabled government to experiment on providing a new and different service that might have led to better outcomes, but without the financial risk. This model of de-risking will hopefully lead to more innovation in provision of services even when government budgets are tight.

There was more positive news out of the UK, where three SIBs returned investor capital. Each of the three SIB partners—Career Connect, Teens & Toddlers and Advisa—met their goals, and investors received a financial return ahead of schedule. The nonprofits worked with Social Finance to improve educational participation for 4,000 teens through a number of activities, including job coaching and after school programs.

Better Outcomes at Lower Cost: Congressman John Delaney’s TEDx Talk on Pay for Success

Congressman John Delaney has been a consistent advocate for Social Impact Bonds and Pay For Success models as a means to address three challenges in government: lack of funding, inability to innovate and insufficient data on social impact. Watch Congressman Delaney’s call-to-action to “put aside the ideological divide” and “stand up for a smarter government” that can “intervene and make a difference in people’s lives but is focused on innovation, fiscal responsibility and focused on new ways of delivering its services.”

Goldman Sachs Asset Management Acquires Imprint Capital

In July, Goldman Sachs Asset Management announced its acquisition of Imprint Capital, an impact investing advisory firm. This acquisition highlights the growing need for impact investing experts within the traditional asset management field and a growing demand for products that consider environmental, social and governance as well as other impact metrics.

Millennial Entrepreneurs Get a Chance to Turn Ideas Into Reality

The Case Foundation is a proud sponsor of the Forbes $1 million Change-the-World Social Entrepreneurs Competition, which will identify and reward young social entrepreneurs leading for-profit and nonprofit social enterprises that address global challenges. This competition presents an opportunity for bright minds under 30 to change the way we approach social issues of our time. If you’re under 30 and changing the world, or you know someone who is, please apply! The deadline is August 26.

Excited about the news and want to learn more about impact investing? Follow our twitter feed @CaseFoundation, and check out the Case Foundation’s A Short Guide to Impact Investing.

Latest Email Marketing Benchmarks and Tips for Nonprofits

Posted on by Case Foundation

 

Email remains one of the most effective communication tools for organizations when they want to engage with constituents, peers, community members and others. But like many of us across sectors, we are not using our email channels as effectively as we could be—and for those of us in the nonprofit sector that is ultimately costing us volunteers, donors, advocates, website visitors and more.

Earlier this week, Laurie Hood, VP of Product Marketing for Silverpop, an IBM Company, presented a webinar titled, Email Marketing Benchmarks: How Do You Measure Up? Hood’s presentation aimed to answer one of the key questions communication leaders consider every time they hit “send” on an email to subscribers—how are your email marketing campaigns performing compared to the average? If asked this about your own email program, would you know the answer? Does it matter?

Hosted by the American Marketing Association, the session was based on Silverpop’s 2015 Email Marketing Metrics Benchmark Study analyzing emails sent by nearly 3,000 brands and 750 companies from more than 40 countries between January 1 and December 31, 2014. The takeaway for those of us in the nonprofit sector and really anyone providing communications through email is that yes, it does matter how your email is performing because the content you share is useless if no one opens what you have painstakingly prepared.

Here are some of the most often used benchmarks when it comes to email marketing that you can use to determine how you measure up:

OPEN RATES

Unique Open Rates: how many people “view” or “open” the email based on whether or not the recipient enables the images in the email or the recipient interacts with the email by clicking on a link.

Overall

  • Mean* = 21.0%
  • Median** = 17.4%
  • Top Quartile*** = 41.3%
  • Bottom Quartile**** = 7.0%

US

  • Mean = 20.7%
  • Median = 16.7%
  • Top Quartile = 40.9%
  • Bottom Quartile = 7.5%

Nonprofits, Association, Government

  • Mean = 27.5%
  • Median = 24.7%
  • Top Quartile = 48.1%
  • Bottom Quartile = 8.0%

Transactional Opens: transactional emails are most often sent by a company, store, vendor or service provider for example, as a follow up to an action taken by the email recipient. Opens for these specific emails are referred to as “transactional opens.”

  • Mean = 44.9%
  • Median = 45.9%
  • Top Quartile = 72.2%
  • Bottom Quartile = 16.6%

By nature of it being a follow-up with an already engaged recipient who trusts the sender the open rates are extremely high compared to when no transaction has occurred. In the social sector, transactional emails often occur after a donation has been made, a volunteer service has been performed or online engagement such as signing a petition has taken place. The follow-up email is often a good place to further engage with your recipient due to the predictable level of engagement shown by the transactional open rate.

 

CLICKS

Click-Through Rates (CTRs): the number of users who click on a specific link out of the total users who viewed the email.

Overall

  • Mean = 2.3%
  • Median = 1.4%
  • Top Quartile = 9.4%

US

  • Mean = 3.0%
  • Median = 1.3%
  • Top Quartile = 9.0%

Nonprofits, Association, Government

  • Mean = 4.0%
  • Median = 2.0%
  • Top Quartile = 11.4%
  • Bottom Quartile = 0.3%

Click-to-Open Rate: of the subscribers who opened the email, how many clicked on a link or image, etc.

Overall

  • Mean = 12.6%
  • Median = 9.4%
  • Top Quartile = 28.7%

US

  • Mean = 11.8%
  • Median = 8.5%
  • Top Quartile = 27.2%

 

LIST CHURN

Hard Bounces: a permanent reason an email cannot be delivered such as a non-existent domain or when a user has blocked your emails.

Overall

  • Mean = .547%
  • Median = .021%
  • Top Quartile = 0%

US

  • Mean = 0.568%
  • Median = 0.260%
  • Top Quartile = 0%

Unsubscribes: when someone chooses to no longer be on a mailing list.

Overall

  • Mean = .130%
  • Median = .021%
  • Top Quartile = 0%

US

  • Mean = .131%
  • Median = .021%
  • Top Quartile = 0%

 

TIPS

Hood also shared several tips to help anyone improve their email communications. I found these three to be particularly helpful when it comes to increasing the success of your email program.

 Tip #1: Make your email as easy to read as possible. The simplest way to do this is to increase the size of the font for the copy. Hood suggests using the following guidelines for font size:

  • Body Copy 14 px+
  • Headlines 22 px+
  • Buttons 44 px by 44 px

Tip #2: Remember to design your email for the devices your readers are using. Hood reminded listeners that in some cases, more than 50 percent of emails these days are being opened on mobile devices. This percentage is only going to increase over time, so be sure to take design for desktop, mobile, etc. into consideration.

Tip #3: Tell your readers what you want them to do – make it obvious! This means making sure your copy is action-oriented and provides readers with a direct and specific call-to-action.

 

One final note—remember, data and benchmarks should be used as a diagnostic tool and taken into consideration alongside elements of design, strength of your list and how active your subscribers are relative to your content, rather than alone or without context.

As part of the Case Foundation’s efforts to improve our own online presence and strengthen our communication channels, we too are taking a look at our own email program and assessing what we can do to improve the experience of our subscribers and future readers. I hope you can also put these benchmarks and tips to use in improving your email distribution!

If you have your own email marketing tips, questions or ideas specific to the nonprofit sector, please share and join the conversation on Twitter using the hashtag #CFBlog.

 

Definitions

  • *Mean – the “average,” derived when you add up all the numbers in your data set and then divide by the number of numbers.
  • **Median – the “middle” value in the list of numbers or data set.
  • ***Top Quartile – the top 25 percent of data, which Silverpop then took the average to determine what the “Top Quartile” was.
  • ****Bottom Quartile – the bottom 25 percent of data, which Silverpop then took the average to determine what the Bottom Quartile was.

 

A Fearless Approach to Ocean Conservation

Posted on by Case Foundation

Earlier this month, I found myself in a sea of sleepy-eyed millennials in a Georgetown University auditorium waiting for the first annual Sustainable Oceans Summit to begin.

The Sustainable Oceans Alliance (SOA), founded by Georgetown student and Case Foundation intern Daniela Fernandez, hosted the summit. SOA is one of the first student-led initiatives started in direct response to U.S. Secretary of State John Kerry’s call to action at the State Department’s 2014 Our Ocean Conference. In his speech, Kerry laid out the crucial steps each of us must take to ensure the health and sustainability of our oceans.

The opening announcement quickly set the tone for the event – we were going to learn exactly how we, as individuals, could change the tide. After seven hours of remarkable speeches and panel discussions from world leaders in ocean conservation, environmental policy and earth and biological sciences, the 400 in-person and hundreds more webcast attendees were indeed invested in keeping our planet blue.

Speakers like the legendary Sylvia Earle from Mission Blue and Maria Damanaki of The Nature Conservancy eloquently illustrated the interplay between the health of our oceans and the health of humankind. “We must protect our oceans as if our life depends on it – because it does,” said Earle. “Eighty five percent of corals are already lost; eighty five percent of fish are endangered, threatened or already gone,” stated Damanaki. After a long pause to let those statistics sink in she went on, “But there is hope in this hopeless situation. Human activity is ocean’s biggest threat and biggest hope. We have the power to change the fate our planet’s lifeline.”

An important focus of the summit, and a reflection of Fernandez’s interest in identifying multi-sector solutions, was the role of three vital industries: science and technology; corporations; and local and national governments. The summit proposed that by exploring the interconnectedness of ocean health and human behavior and wellbeing, these three sectors could realize a range of opportunities for innovative collaboration. The summit provided a new platform for champions of ocean conservation to highlight these opportunities: better business practices, effective legislation and cutting edge technology. The speakers emphasized how multi-sector approaches catalyze solutions to issues such as the global fisheries crisis.

The summit attendees were asked to do more than listen, and 7,500 signatures later the audience and social media activists had successfully made their voices heard. Together, we petitioned the United Nations to include ocean sustainability as a Sustainable Development Goal (SDG). SDGs are a comprehensive collection of actionable, social development goals designed to build upon the Millennium Development Goals (MDGs). SDGs should holistically address social inequalities, issues of poverty and environmental concerns, and it is essential that responsible ocean management does not get left out.

Palauan Ambassador, Stuart Beck, will deliver this very petition directly to the U.N. Secretary General Ban Ki Moon prior to the September 2015 vote to confirm the SDGs. We made our mark; but if the speakers made anything clear, it was that our mission doesn’t stop here.

As the summit came to a close, I found myself in a new environment – in a sea of wide-eyed millennials in a Georgetown University auditorium. We knew that it was our responsibility to take action now. Our naturally innovative and motivated spirit must be directed toward ocean sustainability to ensure a healthy and stable environment, economy and global community for future generations to come.

 

 

Click here to watch the full Summit. 

Racing for a Cure

Posted on by Case Foundation

Recently I watched a 60 Minutes segment on brain cancer patients at Duke University. These men and women had been diagnosed with a type of brain cancer called glioblastoma. The episode went on to tell the story of the clinical trial that used a re-engineered poliovirus to kill cancer cells. That’s right, polio – a disease that once paralyzed more than 1,000 children worldwide each day. I heard about the trial because of Accelerate Brain Cancer Cure (ABC2), an early funder of the polio vaccine research at Duke.  And while it might sound like science fiction, the patients and doctors at Duke have shared hope for the hundreds of thousands of individuals diagnosed with brain cancer each year.

This May, thousands of walkers, runners, volunteers, activists and brain cancer survivors will gather in Washington, D.C. for the world’s largest brain tumor community event – the 18th annual Race for Hope – to support ABC2 and the National Brain Tumor Society (NBTS). I’ve been a supporter of this organization for the past two years for a number of reasons. First and foremost, I have known several individuals who have passed away from brain tumors. Just over two years ago, my dear friend, Shira Levy, broke some disheartening news to me. Her mother Debbie, who had just returned from Eastern Europe on yet another worldly family vacation, was having issues with her balance and her speech. I thought, “this can’t be.” Her mom was a healthy yogi, a businesswoman, and a world traveler, and I thought it couldn’t possibly be true that the woman whose dining room table I had sat around during Thanksgiving was this sick.

Debbie was diagnosed with cancer in the first week of July in 2012. By August, she was unable to walk, and in October she passed away – just 95 days after her initial diagnosis. Her story and her fight was chronicled by Shira’s then fiancée, Dakota, in a photo tribute.

That next year I told Shira about a 5K in D.C. called the “Race for Hope” that was led by ABC2, in conjunction with the Case Foundation and many others. ABC2 was created by Steve Case’s brother Dan, Dan’s wife Stacey, Steve, and Jean Case in 2001 shortly after Dan was diagnosed with brain cancer. It was founded as a nonprofit organization that uses entrepreneurial approaches to bring innovative new treatments to brain cancer patients.

After learning much about the organization during my first year at the Case Foundation I told Shira confidently “You need to sign up for this race in honor of your mom.” She did so, that same week, and “Team Debbie” went on to raise $17,000 to support brain cancer research that first year. I was so proud of Shira and the efforts of her family and friends who had not only honored her mother, but also raised awareness about brain cancer, and thousands of dollars to support the advancements in critical scientific research through research grants and partnerships.

Through strategic partnerships with medical research centers, early-stage biotechnology companies and large multi-national pharmaceutical companies, ABC2 has awarded more than $22 million in brain tumor research funding to qualified physicians and scientists from 42 institutions and companies such as Johns Hopkins in Baltimore, Mass General in Boston, Henry Ford Hospital in Detroit and Dana-Farber in Boston.

The Race for Hope has been a big part of their ability to support these doctors and their trials. Since its inception in 1998, the race has united more than 100,000 attendees and raised more than $20 million for brain tumor research and advocacy. This year’s race includes nearly 600 fundraising teams, and is slated to raise nearly $2.5 million for research. Once again I will join “Team Debbie” in honor of Shira’s mother.

The need to increase research funding for brain cancer is urgent. Nearly 700,000 Americans are living with a primary brain tumor diagnosis. Within the next year, more than 210,000 more will be diagnosed with a primary or metastatic brain tumor. We can find a cure and support organizations like NBTS and ABC2 and their tremendous efforts to raise funds to give families, like Shira’s, hope.

Learn more about the efforts and the race at www.curebraintumors.org

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